A rather hot day in Brisbane and I've been holed up in my office for the past two weeks working my little Sri Lankan bum off on my major once-a-year-project.
In a nutshell, I specialise in assisting people who build nursing homes to squeeze some bucks from the Federal Government so they can build new facilities.
The last week has been spent studiously at my desk, broken only by a sojourn to the hospital.
Because after her first chemo shop, my sister Fiona had a bit of an allergic reaction - we think to the antie-emetics - and ended up in hospital on Day 2.
Nicky and I motored over to see her and were our usual sympathetic selves with the words: "You look like shit" being the first words uttered as poor Fiona sat their forlornly picking at her plate of unappetising hospital food.
The good news is that, as as result of her allergic reaction, it MAY be that she will only need four -not six - shots of chemotherapy and I can only hope this is the case.
It's a few days later today and true to form, Fiona the self-confessed worry-wart has been imagining the worst of what, in my opinion are small and insignificant side effects. Today she wanted to speak to me about a pain in her hand.
I have urged her to shrug things off more rather than assuming every ache, pain and reaction means we should be polishing up her wooden box.
Today she also told me how the school at which she has worked had run a fundraising drive to raise funds to support a weekly cleaner through her treatment. We agreed that one thing cancer teaches you is how unbelievably kind and generous some people can be.
And, as we seem to do a little bit these days, Fiona and I contemplated the inevitability of our respective untimely demises. We all must eventually leave this world, eh!
It only after I hung up, that I realised the context of our discussion.
For you see, if the Mayans were right, in exactly 22 days it seems the World Will End.
It's not something I've paid much attention to - Doomsday Sayers. I avoid them like the plague - as keenly as I avoid cliches.
Nonetheless, in taking stock of my adventures thus far, my curiosity was piqued. Will the world end four days before Christmas, annoyingly meaning that the tickets I bought to a show in January will go unused? Frustratingly meaning there'll be no Boxing Day sales to tempt my wallet? Sadly meaning that I will miss the Senior Referees Seminar in February?
Is this how it will end? Fiona only two shots through her chemo program and hairless; I, one breasted and cursed with a head amass with follicles more suited to a pubic region?
Will it end with Harry half way through his degree, all those years of private education, academic achievements and scholarships gone to waste? And Ben, still to get the hair cut he needs? And Al still to get that hole in one? And me, still to see George Clooney in the flesh (in that G-string)?
You think it's a callous thing, life suddenly ending, but there is a bright side. If nothing else, the impending End of the World should give us all cause to take stock and see where we are, and how far we've come. Cancer has certainly done that for me.
If nothing else, knowing or seeing that end must teach us to applaud ourselves for what we have achieved, and what we have overcome, simply to still be here!
Because, as I have come to appreciate life is fucking hard and, really, it takes some guts and stamina to make it to whatever and whenever turns out to be THE END.
In my line of work of course, I meet many elderly people, many of who are in bad shape. These are the good folk who have reached what might be called that 'ripe old age' when your life is past that climax, and is now about denouements, finales and codas. When it's no longer about colons or commas or even ...ellipses... but full stops.
Frankly, I feel I should applaud them, cheer them on. For neither you nor I can imagine what traumas or perils and challenges these elderly have survived, and how strong, persistent and tenacious they have been simply to get to that stage in life where they might actually be described as OLD.
Every old person is a survivor. Every elderly person has hauled that now wrinkled backside through lordy knows what swamps and jungles - and for that we must surely respect them (however mean, irascible or unlikeable they may be).
Put simply, it takes sheer balls to have a long life.
And so, I guess you have to admit, the End of the World - in 22 days - is looking like a merciful release. Either that, or the coward's way out.
Doomsday may well be a realistic scenario - check out this site http://www.liveindia.com/mayacalendar/index.html (copy and paste the URL into your finder window).
I for one, am unconcerned either way. I enjoy life and I enjoy living. There is something rather quaint and old fashioned about, well, breathing!
However, as I have said, there are no guarantees for any of us. Who really knows what the future has in store for you or me?
All we can do is live now and live well.
Seize the day however you can. Tomorrow may, still, not come.
Writer, Bronwyn Hope, shares her stories and perspectives on life following her personal journey with breast cancer.
Thursday, November 29, 2012
Thursday, November 22, 2012
Sherpa 1
It's a fantastic day today as I arise after 9 am. I'm a bit exhausted because last night I went to a rare concert. Al, me and a few friends made the long trek to Suncorp Stadium, where we watched the iconic band, 'Coldplay'.
It's not that I'm a massive fan, but I do like a couple of their songs.
The concert was sold out and, with tickets to the mosh pit, it was an experience standing in the open under a clear, balmy sky, a cool half moon hanging from the sky like a nibbled biscuit, while Chris Martin sang some of the bands classics including my favourite: "I Will Fix You".
"When you try your best but you don't succeed/When you get what you want but not what you need/When you feel tired by you can't sleep/Stuck in reverse/And the tears come streaming down your face/When you lose something you can't replace/When you love someone but it goes to waste/What could be worse?
And the chorus - I love it - 'Lights will guide you home/And ignite your bones/And I will try to fix you.
They released confetti - pink hearts, butterflies. I felt sad. For a minute I thought that it's what we all are: confetti flung into the wind, expunged into the universe in an act of love, celebration, flying, soaring, fluttering, until we finally settle on the ground, underfoot. Squashed.
Shit. A miserable thought like that could make anybody weep. (And afterwards, because I can't help myself, I did wonder if when 'Coldplay' becomes as old as say 'The Rolling Stones', they might change their name to "Oldplay"?)
In a good mood, Al and I return home after midnight, exhausted. The zeds reverberate around the room pretty much as soon as our heads hit our respective pillows.
But when I wake today, I need coffee to get going. And I know I have a big day ahead of me.
Fiona starts her chemotherapy today and I've promised to keep her company.
She's at the Royal Brisbane Hospital on the other side of town and it takes around 55 minutes to get there. It's a good drive and I make good time.
It takes me a while to navigate the grounds and locate the car park. The RBH (as it's more commonly known) is now a new hospital and it's quite impressive. Soaring ceilings, plenty of pretty artworks, people everywhere.
I ask directions from a volunteer with a bung eye who is sitting behind a desk in the foyer and eventually navigate my way to the oncology ward in the Joyce Twedell building. Briefly I wonder who Joyce was?
When I reach the right floor, I have to queue for 5 minutes just to ask where Fiona is, but I find the staff helpful.
Fiona, with her husband Richard, is seeing her doctor and I spend a few minutes flicking through a magazine while I text her to advise her I'm in the waiting room.
Soon the three of us are reunited and we have to go through some rigmarole as Fiona hasn't had her blood test. We go down lifts, up escalators, to pathology. We kill an hour having coffee. I must say we have a really good conversation. We go back to the oncology ward.
We are joined by Xavier, Fiona's gorgeous first son. He's a bit of a cool dude, Xavier, with aspirations to be an actor and a bit of the chutz-pah of a confident 20-year-old. A nice kid who take his role as the eldest of five seriously. He has promised to look after his mum. What a sweetie.
And so the four of us wait until Fiona is finally led to - ta-da-da-DUM - the chair. There's a bit more stuffing around about dates on forms, a bit of confusion about pre-medications she should have taken but wasn't told about. A tiny bit chaotic I think, but what can you expect? It's a bloody busy ward and these people are worked off their feet, interchanging shifts, manipulating paperwork.
Soon Fiona is receiving her pre-treatment briefing, the heat pack is on her veins. She is first injected with some anaesthetic and the cannular is neatly inserted by a confident nurse dubbed the "Master Cannulator". Which I guess is better than being dubbed the "Master Bater".
It is at this stage that I see the way Fiona's eyes are wide. I'm not sure if Richard sees it but as her sister, I know she is terrified. I know I must have looked like that: that split second, that harsh moment of reality when you know it's not just a bad dream. You really do have breast cancer. This really is chemotherapy. Shit, shit, shit. Why is this happening I think? To her, after me?
But Fiona is stoic. She pushes through the fear and eventually, I think she seems to be handling it well after all. There's a bit more waiting. A problem with paperwork, the pharmacy and the drugs she needs to be sorted.
It is at this point that Richard asks the nurse if he can put on the ice cap he has prepared. You see, it's been proven that if you place an icy cap on your head prior to receiving the Doxyrubin - the one that causes the hairless - might help preserve precious follicles.
Fiona puts on the cap which makes her look like she's a rugby forward in protective headgear. She looks kind of cute I have to say.
There's a bit more waiting and, by this time, would you believe it's 4 pm! I'm starving and so is Xavier so we decide to get something to eat. Neither Fiona nor Richard are hungry - well, would you be?
When I return, it's all started. My beautiful sister who has never had a single drug inserted into her pristine body - who gave birth to five big heifer babies without a single sedative, who has studiously avoided pharmaceuticals for most of her life - has her first taste of my old mate Doxyrubin.
You may recall it's the "Red Devil", the one I really hated. Fiona says it's cold just like I said it was. I feel a bit sick in the stomach seeing the red stuff again.
But Fiona is real trooper through all of this.
We are chatting so much I don't really notice the point at which the drugs are switched. When Doxyrubin becomes Docetaxyl but there it is - that evil black bag.
We are little through this procedure when Fiona panics. She feels short of breath. There's a lump in her throat.
Momentarily, my thoughts are suspended. Shit, shit, shit, I think, please let this go without a hitch.
Fiona presses the emergency nurse call button and then, it is poetry in motion as three nurses converge on her so quickly it's really very impressive. This may be the public hospital system but be assured, the quality of care is very high. The drug is halted, saline is given, an oxygen mask is placed on her face, pulse and blood pressure monitors are mounted.
A minor allergic reaction perhaps they say and so phenergan is administered, sending Fio off into a droop of sedation.
She's taken off the drug while things recover and Xavier leaves.
Eventually, it all begins again and pretty soon, phase two of my sister's first chemotherapy is over.
By this time, it's getting close to 6 pm. After 7 hours, the parking costs here go from $22 to $28 and being a cheapskate, I think I should vamoose.
The worst is over. From what I can recollect, the Cyclophosphamide to follow is not so bad.
I kiss Fiona, I kiss Richard.
As I drive home I think that in 18 weeks, the brunt of Fiona's treatment will be over.
I have absolutely no doubt that she will rally through her treatment with flying colours. Because we had the same parenting, she has my positive attitude, resilience, with that ounce of philosophy that allows us to keep things in perspective.
Importantly, she has the one ingredient I believe is essential to her recovery - the love and support of family and friends.
In the end, I think, it is this that is the light that guides you home.
In the end, this is, really, what will fix you.
It's not that I'm a massive fan, but I do like a couple of their songs.
The concert was sold out and, with tickets to the mosh pit, it was an experience standing in the open under a clear, balmy sky, a cool half moon hanging from the sky like a nibbled biscuit, while Chris Martin sang some of the bands classics including my favourite: "I Will Fix You".
"When you try your best but you don't succeed/When you get what you want but not what you need/When you feel tired by you can't sleep/Stuck in reverse/And the tears come streaming down your face/When you lose something you can't replace/When you love someone but it goes to waste/What could be worse?
And the chorus - I love it - 'Lights will guide you home/And ignite your bones/And I will try to fix you.
They released confetti - pink hearts, butterflies. I felt sad. For a minute I thought that it's what we all are: confetti flung into the wind, expunged into the universe in an act of love, celebration, flying, soaring, fluttering, until we finally settle on the ground, underfoot. Squashed.
Shit. A miserable thought like that could make anybody weep. (And afterwards, because I can't help myself, I did wonder if when 'Coldplay' becomes as old as say 'The Rolling Stones', they might change their name to "Oldplay"?)
In a good mood, Al and I return home after midnight, exhausted. The zeds reverberate around the room pretty much as soon as our heads hit our respective pillows.
But when I wake today, I need coffee to get going. And I know I have a big day ahead of me.
Fiona starts her chemotherapy today and I've promised to keep her company.
She's at the Royal Brisbane Hospital on the other side of town and it takes around 55 minutes to get there. It's a good drive and I make good time.
It takes me a while to navigate the grounds and locate the car park. The RBH (as it's more commonly known) is now a new hospital and it's quite impressive. Soaring ceilings, plenty of pretty artworks, people everywhere.
I ask directions from a volunteer with a bung eye who is sitting behind a desk in the foyer and eventually navigate my way to the oncology ward in the Joyce Twedell building. Briefly I wonder who Joyce was?
When I reach the right floor, I have to queue for 5 minutes just to ask where Fiona is, but I find the staff helpful.
Fiona, with her husband Richard, is seeing her doctor and I spend a few minutes flicking through a magazine while I text her to advise her I'm in the waiting room.
Soon the three of us are reunited and we have to go through some rigmarole as Fiona hasn't had her blood test. We go down lifts, up escalators, to pathology. We kill an hour having coffee. I must say we have a really good conversation. We go back to the oncology ward.
We are joined by Xavier, Fiona's gorgeous first son. He's a bit of a cool dude, Xavier, with aspirations to be an actor and a bit of the chutz-pah of a confident 20-year-old. A nice kid who take his role as the eldest of five seriously. He has promised to look after his mum. What a sweetie.
And so the four of us wait until Fiona is finally led to - ta-da-da-DUM - the chair. There's a bit more stuffing around about dates on forms, a bit of confusion about pre-medications she should have taken but wasn't told about. A tiny bit chaotic I think, but what can you expect? It's a bloody busy ward and these people are worked off their feet, interchanging shifts, manipulating paperwork.
Soon Fiona is receiving her pre-treatment briefing, the heat pack is on her veins. She is first injected with some anaesthetic and the cannular is neatly inserted by a confident nurse dubbed the "Master Cannulator". Which I guess is better than being dubbed the "Master Bater".
It is at this stage that I see the way Fiona's eyes are wide. I'm not sure if Richard sees it but as her sister, I know she is terrified. I know I must have looked like that: that split second, that harsh moment of reality when you know it's not just a bad dream. You really do have breast cancer. This really is chemotherapy. Shit, shit, shit. Why is this happening I think? To her, after me?
But Fiona is stoic. She pushes through the fear and eventually, I think she seems to be handling it well after all. There's a bit more waiting. A problem with paperwork, the pharmacy and the drugs she needs to be sorted.
It is at this point that Richard asks the nurse if he can put on the ice cap he has prepared. You see, it's been proven that if you place an icy cap on your head prior to receiving the Doxyrubin - the one that causes the hairless - might help preserve precious follicles.
Fiona puts on the cap which makes her look like she's a rugby forward in protective headgear. She looks kind of cute I have to say.
There's a bit more waiting and, by this time, would you believe it's 4 pm! I'm starving and so is Xavier so we decide to get something to eat. Neither Fiona nor Richard are hungry - well, would you be?
When I return, it's all started. My beautiful sister who has never had a single drug inserted into her pristine body - who gave birth to five big heifer babies without a single sedative, who has studiously avoided pharmaceuticals for most of her life - has her first taste of my old mate Doxyrubin.
You may recall it's the "Red Devil", the one I really hated. Fiona says it's cold just like I said it was. I feel a bit sick in the stomach seeing the red stuff again.
But Fiona is real trooper through all of this.
We are chatting so much I don't really notice the point at which the drugs are switched. When Doxyrubin becomes Docetaxyl but there it is - that evil black bag.
We are little through this procedure when Fiona panics. She feels short of breath. There's a lump in her throat.
Momentarily, my thoughts are suspended. Shit, shit, shit, I think, please let this go without a hitch.
Fiona presses the emergency nurse call button and then, it is poetry in motion as three nurses converge on her so quickly it's really very impressive. This may be the public hospital system but be assured, the quality of care is very high. The drug is halted, saline is given, an oxygen mask is placed on her face, pulse and blood pressure monitors are mounted.
A minor allergic reaction perhaps they say and so phenergan is administered, sending Fio off into a droop of sedation.
She's taken off the drug while things recover and Xavier leaves.
Eventually, it all begins again and pretty soon, phase two of my sister's first chemotherapy is over.
By this time, it's getting close to 6 pm. After 7 hours, the parking costs here go from $22 to $28 and being a cheapskate, I think I should vamoose.
The worst is over. From what I can recollect, the Cyclophosphamide to follow is not so bad.
I kiss Fiona, I kiss Richard.
As I drive home I think that in 18 weeks, the brunt of Fiona's treatment will be over.
I have absolutely no doubt that she will rally through her treatment with flying colours. Because we had the same parenting, she has my positive attitude, resilience, with that ounce of philosophy that allows us to keep things in perspective.
Importantly, she has the one ingredient I believe is essential to her recovery - the love and support of family and friends.
In the end, I think, it is this that is the light that guides you home.
In the end, this is, really, what will fix you.
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